This website provides key information and news about ‘INTUIT: Interaction Design for Trusted Sharing of Personal Health Data to Live Well with HIV’, a new project funded by the EPSRC (Engineering and Physical Sciences Research Council) that commenced on 1st November 2018. INTUIT brings together experts in the lived experience of HIV, HIV Medicine, Public Health, Human Computer Interaction, Design, Health Psychology, Health Informatics and Applied Ethics to:
- Envision, develop and evaluate pioneering trusted new tools that empower individuals to use personal data for self-managing their condition, to live and age well with HIV;
- Understand what it means to share these data with particular others, including healthcare providers, communities, and private organisations;
- Identify ethical issues associated with challenges of Trust, Identity, Privacy and Security for managing stigma and well-being, to inform the development of frameworks for responsible research innovation.
Whilst our work plan focuses on people living with HIV, it ensures that insights from studying this population has transferability to other stigmatised long-term conditions such as mental health conditions.
On this website we will share news from our unfolding research programme, along with details about related public engagement opportunities and early impacts.
The INTUIT programme is fundamentally ‘co-created’ by engaging academic and non-academic partners and stakeholders in defining the research, conducting studies, and making sense of the results. This includes: members of the HIV peer community and their advocates; academic clinicians; experts in public health surveillance; Internet ethicists; and socially responsible innovators and ‘digital disruptors’ in design and cybersecurity who envision markets for new products and services. These experts – and their affiliated organisations, groups, and institutions – understand the challenges related to the research, and can involve typically hard-to-reach groups who may or may not be in clinical care, ensuring wide engagement and subsequent impact. The experts sit on a Strategic Advisory Board (SAB) for the project.
The INTUIT team will endeavour to create effective platforms across the 30-month work programme for sharing multiple voices on the research. This website will be developed as the project unfolds to make more information available about plans, activities and early insights and impacts.
For more information about the INTUIT project or to get in touch with the team, please contact us by email: firstname.lastname@example.org.