‘INTUIT: Interaction Design for Trusted Sharing of Personal Health Data to Live Well with HIV’, is a project funded by the EPSRC (Engineering and Physical Sciences Research Council) that commenced on 1st November 2018. INTUIT brings together experts in the lived experience of HIV, HIV Medicine, Public Health, Human Computer Interaction, Design, Health Psychology, Health Informatics and Applied Ethics to:
- Envision, develop and evaluate new tools that empower people to use their personal information for self-managing HIV, in order to live and age well;
- Understand what it means to share this information with others, including healthcare providers, communities, and private organisations;
- Identify ethical issues associated with issues of Trust, Identity, Privacy and Security related to sharing information and managing stigma and well-being. This will help us to develop responsible processes for conducting technology research.
Whilst our work plan focuses on people living with HIV, it ensures that insights from the research can be of value for understanding barriers to sharing personal information when living with other potentially stigmatised long-term conditions, such as mental health conditions.
On this website we will share news from our unfolding research programme, along with details about related opportunities for public engagement and impact.
The INTUIT programme is fundamentally ‘co-created’. This means that our research is collaboratively defined, conducted, and made sense of, between the University partners, partnering organisations and stakeholders. Our team includes: people living with HIV and their advocates; academic clinicians; experts in public health surveillance; Internet ethicists; and socially responsible innovators and ‘digital disruptors’ in design and cybersecurity who envision markets for new products and services. These experts – and their affiliated organisations, groups, and institutions – understand the challenges related to the research, ensuring wide engagement and impact. The experts sit on a Strategic Advisory Board (SAB) for the project.
The INTUIT team will endeavour to create effective forums across the 30-month work programme for sharing multiple voices about the research. This website will be developed as the project unfolds to make more information available about plans, activities and early insights and impacts.
For more information about the INTUIT project or to get in touch with the team, please contact the Principal Investigator by email: Abigail.Durrant@newcastle.ac.uk