Professor Abigail Durrant
Principal Investigator, Northumbria University
Abi is Professor in the School of Design. She predominantly works in the field of Human-Computer Interaction (HCI). Abi’s research is grounded in participatory, design-led methodologies, and addresses the significant design challenges that we face for managing identity in our everyday interactions with personal data. Her recent Leverhulme fellowship (ECF-2012-642) delivered insight on the value of design in interdisciplinary research. She was previously Co-I on EPSRC Charting the Digital Lifespan (EP/L00383X/1), investigating online identity management during major life transitions. She is a Steering Committee member for the Research Through Design (RTD) Conference, a member of the AHRC Peer Review College, and Associate Fellow of the Higher Education Academy. She is Director of Equality, Diversity and Inclusion for the School. Abigail trained in Interaction Design and Social Psychology and has 20 years’ professional experience in human-centred design research. She previously ran a design research consultancy with clients in the Healthcare sector and in Government agencies.
Professor Lynne Coventry
Co-Investigator, Northumbria University
Lynne is Professor and Director of the Psychology and Communication Technology Lab (PaCTLab) at Northumbria. Her HCI research is focussed upon security, trust and privacy behaviours. She is Northumbria’s PI for a Euro 4.2 Million Horizon 2020 project (ACANTO), exploring privacy issues for technology supporting the mobility of older adults and a Co-I on Horizon 2020 (CYBECO) investigating cybersecurity insurance and EPSRC (cSALSA) exploring cybersecurity across the lifespan. Previously she was Northumbria lead for a £1.1 million EPSRC project (Chaise) and is a founding member of the UK’s Research Institute of the Science of Cybersecurity. She led a Government Office for Science Report on ‘Using behavioural insights to improve the public’s use of cyber security best practice’ and was a member of the Blackett Review for the GOS 2014 Report ‘The Internet of Things: Making the most of the Second Digital Revolution’. She co–authored the ESRC/Dstl commissioned review on cyber situational awareness, on trust and privacy issues surrounding Big Data and IoT. She sits on the government Advisory Board for the Security of IOT.
Dr Elizabeth Silence
Co-Investigator, Northumbria University
Elizabeth Sillence is an Associate Professor in Psychology at Northumbria, and a member of the PaCT Lab. Liz has a background in Psychology and Ergonomics and a PhD in Human Computer Interaction. Liz’s research interests are focused on e-health and she has worked on a number of funded projects exploring trust, engagement and decision-making in health and security settings. Liz has published widely on the issues of trust, e-health and online support communities.
Dr Caroline Claisse
Research Associate, Northumbria University
Caroline has a background in graphic and interaction design. She graduated from the Royal College of Art where she developed her interest in inclusive and participatory design. Since then, she has conducted participatory research with diverse groups where she used her expertise to design tools for co-creation. In her PhD, she explored the potential of interactive technology for museums and engaged the local community in the process of creating multisensory and digitally-augmented experiences of heritage. Caroline has received several grants to support her public engagement and exhibition work.
Research Associate, Northumbria University
Emma Simpson is an ECR at PaCT Lab, Northumbria University. With a background in human nutrition, public health and health services research, Emma recently submitted her PhD thesis as part of the Digital Civics studentship at Open Lab, Newcastle University. Her thesis research investigates the role of citizen-generated data in the context of public health and breastfeeding support. Emma is interested in the role of person-generated data from both a HCI and public health perspective in improving health and wellbeing and provision of public services.
Doctoral Researcher, Northumbria University
Kiersten Hay is an interdisciplinary designer currently working on her PhD in human-computer interaction design at Northumbria University. Her research focuses on how women living with HIV in the UK use (or don’t use) technology, and how it could (or shouldn’t) be used to support wellbeing. Her research interests include online informational privacy, identity, service design, interactive narratives, feminism, and visual communications. Kiersten has previously been awarded a Master of Arts degree in Design Informatics from the Edinburgh College of Art, and a Bachelor of Design from Ryerson University in Fashion Communications.
Doctoral Researcher, Northumbria University
I have a background in teaching and psychology. I have been an HIV activist in community work, prevention, treatment, care, advocacy and training for the past 20 years. I am a longstanding member of ICW (International Community of Women Living with HIV) and a former European Representative of the network. I have held a number of advocacy positions in both national and international HIV organisations and networks. Prior to my studies I worked with the UK Coalition of People Living with HIV in London as an Information, Advice and Guidance worker, volunteer co-ordinator and trainer with the Positive Futures programme. I am a trustee on the board of HART (Hillingdon AIDS Response Trust) and a founding member and Chair of the network, WECARe+ (Women in Europe and Central Asia Regions plus). I also sit on the strategic advisory board for EPSRC INTUIT project, representing Northumbria University. My PhD at Northumbria is provisionally entitled: “A Life Course Perspective on HIV Support Services: Understanding Fit for Purpose and Exploring Opportunities for Needs; Living Healthy, Ageing and Change”. It will be cross-disciplinary, drawing on social design and business psychology, and will encompass organisational perspectives alongside individual and community perspectives.
Dr Shema Tariq
Co-Investigator, University College London
Shema is a Clinical Research Fellow at UCL’s Institute for Global Health, and Honorary Consultant HIV Physician at Mortimer Market Centre. Her main area of interest is the health and well-being of women living with HIV. She is Chief Investigator of the PRIME Study, one of the largest studies of HIV and ageing in women internationally. Shema trained in epidemiology and medical anthropology, and has expertise in mixed-methods and interdisciplinary research. Her academic experience includes doctoral research on HIV care during pregnancy, and a Fulbright Scholarship to Columbia University analysing data on late HIV diagnosis. She has a number of national roles including Vice-Chair of the British HIV Association’s HIV and Pregnancy Guidelines Committee; and Trustee, Positively UK.
Dr Jo Gibbs
Co-Investigator, University College of London
Jo is a Senior Clinical Research Associate in the Institute for Global Health at UCL, and an Honorary Consultant in Sexual Health and HIV at Mortimer Market Centre. Her research interests include digital health, legal and regulatory issues surrounding online care, privacy and confidentiality in an online context, and public health. Her MRC-funded doctoral research was within the eSTI2 (electronic self-testing instruments for sexually transmitted infections) consortium. More recently she has led research funded by i-sense (an EPSRC funded consortium (EP/R00529X/1)). Her research is methodological, applied and interdisciplinary. She is a CASMI (Centre for Advancement of Medical Innovation) Fellow.
Dr Karen Lloyd
Senior Research Fellow, University College of London
Karen is a Senior Research Fellow in the Institute for Global Health at UCL. She is a medical sociologist and qualitative researcher with research interests in the use of HIV treatment for prevention, personal engagements with digital technologies for HIV self-management, and constructions of identity through HIV bio- and digital technologies. She received her PhD in Sociology from the University of California, San Francisco, where her doctoral research explored how discourses about HIV treatment as prevention have emerged within the social worlds of HIV professionals. She was previously a postdoctoral researcher at the University of Reading School of Pharmacy and worked as a research assistant during her PhD at the Center for AIDS Prevention Studies (CAPS) at UCSF.
Dr Simone Stumpf
Co-Investigator, City, University of London
Simone is a Senior Lecturer in the Centre for Human-Computer Interaction Design, School of Mathematics, Computer Science and Engineering. Her research focus is end-user interactions with personal information, Artificial Intelligence (AI) and physical computing systems. She has authored over 60 publications in international journals and conference proceedings, and been an investigator on healthcare research projects that have attracted significant funding, such as SCAMPI (Self-Care Advice, Monitoring, Planning and Intervention). She has worked extensively with private companies through research contracts, Knowledge Transfer Partnerships (KTPs), and consultancy. Dr Stumpf also has experience as a User Experience Architect researching, designing and evaluating user interfaces in a commercial context. Dr Stumpf brings her expertise in investigating the capture and sharing of personal information and co-designing new applications and online tools to the INTUIT project. She has co-authored several publications that address technology for people living with HIV.
Dr Adrian Bussone
Research Associate, City, University of London
Adrian is a post-doctoral researcher in the Centre for HCID. Her recently completed PhD was focused on understanding how technology can support people living with HIV in self-managing and reflecting on their personal health information. Before doing her PhD at City, Adrian completed the MSc in Human Centred Systems at the same University. Her move to academia followed five years of working as a researcher and designer at a medical device consultancy, where she worked on projects that placed her in operating rooms around the country and working on FDA submissions for Class I-III devices?
Peer Researcher, Terrence Higgins Trust
Bakita is a Peer Researcher at Terrence Higgins Trust and is supporting with design and conduct the qualitative research. She has a particular interest in ethical engagement of participants and centring lived experiences in project and process design. As well as her role at Terrence Higgins Trust, Bakita holds a number of national and international HIV advocacy positions, including an Advisory Committee Member on WHO’s Global Validation Advisory Committee (GVAC) and a Founding Member on Viiv Healthcare’s Positive Action Strategic Advisory Committee (PA-SAC). She is also the former Chair of the Global Network of Young People Living with HIV (Y+ Global) and has recently graduated with a MA in Anthropology and Community Development from Goldsmiths College.
Dr Jon Bird
Co-Investigator, Bristol University
Jon is Associate Professor in Digital Health at Bristol. His research focus is on developing mobile technologies for a range of health domains, including tracking the health and wellbeing of people living with HIV. His recent projects include: a longitudinal study of the use and effectiveness of activity trackers (Fitbits); systems development work for the NHS to enable Transfusion Practitioners to interpret blood audit data and use this to plan how to reduce unnecessary blood transfusions in hospitals (Co-I NIHR funded). Other notable initiatives in which Bird has had an involvement include: mobile app development work to rapidly conduct verbal autopsies in low resource settings (PI WHO funded); machine learning applications to analyse medical data; studies of the effectiveness of medical technologies in situ (bar code medication systems in hospitals and the use of an electronic system for GPs to request hospital tests for patients, and the use of electronic prescription systems). Of central interest to Bird is developing technologies to facilitate the collection, sharing and understanding of health data.
Researcher, Bristol University
Spencer is a research associate of the University of Bristol’s Digital Health Engineering research group. Graduating from the University of Bristol, Spencer’s research primarily focused on the applications of machine learning to electronic medical records. Within the INTUIT project he is developing mobile applications to aid condition management and communication.
Dr Ewa Luger
Co-Investigator, Edinburgh College of Art
Ewa holds a Chancellor’s Fellowship in Digital Arts and Humanities at the University of Edinburgh, a faculty fellowship at the Alan Turing Institute, and is a consulting researcher at Microsoft Research (UK). Ewa is an interdisciplinary researcher with a specific interest in applied ethics and intelligent systems and is affiliated to the Centre for Design Informatics. She is also a member of the Centre for Research into Information, Surveillance and Privacy (CRISP), and the IEEE Global Ethics Initiative ‘Ethically Aligned AI’. Prior to this Ewa was a fellow at Corpus Christi College, University of Cambridge, and a postdoctoral researcher at Microsoft Research. Ewa draws upon 15 years of research and evaluation within the Third Sector, specialising in digital inclusion. During that time Ewa led more than 35 national research and evaluation projects, working with marginal/sensitive/vulnerable groups such as offenders, ex-offenders, homeless individual, young people not in education, employment or training (NEETs), the long term unemployed, black and minority ethnic (BME) groups and the Army.
Prof. Abigail Sellen, Microsoft Research (MSR) Cambridge;
Andrew Dalton, University of Sunderland;
Ant Babajee, Middlesex University; The HIV Treatment Advocates Network (UK-CAB);
Dr Alyson Dodd, Northumbria University;
Dr Amir Mehrkar, INTEROPen;
Prof. Dave Robertson, Edinburgh University;
Deborah Gold, NAT (National Aids Trust);
Dominic Edwardes, Terrence Higgins Trust (THT);
Helen Anderson, Blue Sky Trust;
Prof. Jane Anderson OBE; Homerton University Hospital NHS Foundation Trust;
Jane Shepherd, UK-CAB;
Dr Jill Dixon, Newcastle upon Tyne Hospitals NHS Foundation Trust;
Julie Dawson, YOTI;
Dr Manreet Nijjar, Consultant Physician in Infectious Diseases and Co-Founder of Truu;
Dr Richard Ma, General Practitioner, London and Clinical Research Fellow, Imperial College London;
Tom Hayes, UK-CAB;
Dr Valerie Delpech, National Infection Service, Public Health England (PHE);
Wezi Thamm, Women in Europe & Central Asian Regions plus (WECARe+) Network; UK-CAB;