CHIME Study
This study is now closed. This video has information about the study and what taking part involved. This study was supported by the THT User Involvement Programme (user.involvement@tht....
Studies on Health Data Sharing Ethics and Values
We have worked with a diverse group of stakeholders to discuss the sharing of personal health data by people with HIV for healthcare provision, and with peer support organisations and...
Smartphone App Evaluation for Self-care with HIV
We conduct ‘Research-through-Design’ on INTUIT, which means that we imagine, make, and test designs with people as part of our research practice, to raise questions about what may need to...
Surveying attitudes on personal health data sharing
INTUIT investigated Trust, Identity, Privacy and Security (TIPS) concerns around the sharing of self-generated health and lifestyle data primarily among people living with HIV, but also for other potentially stigmatised...
On Barriers and Enablers to Personal Data Sharing
INTUIT investigated Trust, Identity, Privacy and Security (TIPS) concerns around the sharing of self-generated health and lifestyle data primarily among people living with HIV, but also for other potentially stigmatised...
Clinical Studies on Patient-Generated Data Sharing
Part of the INTUIT programme included linked clinical studies led by Newcastle University (NU) with University College London (UCL). We investigated what types of information NHS Healthcare Professionals (HCPs) and...
Diary Study on HIV Self-Care
We conducted a longitudinal Diary Study with seven UK adults with HIV to understand their lived experience managing the condition over time. A bespoke paper diary was designed for participants...
Studies on Personal Data Sharing with Peers
Part of the INTUIT research programme was to investigate the sharing of personal health information within the HIV community, with others who also live with this condition (peers). Two linked...
Visual Poetic Inquiry
An interesting part of our project has involved using methods from the creative arts to conduct our studies. We have learned that using artistic methods can be an exciting way...
Workshops for Research Co-Creation
Early in the INTUIT programme, we conducted a series of collaborative and creative workshops to discuss self-care practices for living well with HIV and managing the condition. Through these engagements,...